3AD3EBB91B2F008587258838005A1B2D Hearing Summary CLICS/CLICS2022A/commsumm.nsf PUBLICBILL SUMMARY For SB22-186HOUSE COMMITTEE ON HEALTH & INSURANCEDate May 4, 2022 Location Old State Library SB22-186 - Referred to House Appropriations Attachment Tag File Name Attachment B http://www2.leg.state.co.us/CLICS/CLICS2022A/commsumm.nsf/0/557861C41572...$File/Attachment B.pdf?OpenElement Attachment B.pdf 10:25:19 AM ML McKean, bill co-prime sponsor, introduced SB22-186. The bill creates the Rare Disease Advisory Council (council) in the Department of Public Health and Environment to study and make recommendations concerning the needs of individuals with rare diseases. The council consists of 12 voting members appointed by the chairs of the House Public and Behavioral Health and Human Services Committee, the House Health and Insurance Committee, and the Senate Health and Human Services Committee. The Director of the Office of Health Equity or their designee serves as an ex officio nonvoting member. Initial appointments will be made by October 1, 2022. 10:30:49 AM Representaive Mullica, bill co-prime sponsor, gave opening comments on the bill. 10:31:26 AM A fact sheet was handed out to the committee (Attachment B). 10:32:14 AM Edie Busam, on behalf of Annissa Reed from the National Organization for Rare Disorders, testified in support of the bill. 10:34:18 AM Motion Refer Senate Bill 22-186 to the Committee on Appropriations. Moved Mullica Seconded Sirota Froelich Excused McCormick Yes Mullica Yes Ransom No Sirota Yes Soper Yes Titone Yes Will Yes Williams No Ortiz Yes Lontine Yes Final YES: 8 NO: 2 EXC: 1 ABS: 0 FINAL ACTION: PASS